SESSION 6: 2.25-3.35pm
Room: Mainstage
INNOVATING NEW SUPPORTED LIVING SOLUTIONS PANEL
About this session:
Where will my child live when older? When I die? This urgent question must be answered by all parents whose children are intellectually or developmentally delayed. Solutions range from arranging to leave the family home in trust or simply purchasing another home nearby and renting rooms to more structured and well supported solutions. Fortunately, there are many successful examples of the latter option -- and many more under development now. Unfortunately, demand far exceeds supply and most parents will have to develop their own solutions.
This panel will explore solutions created or managed people who have actually succeeded. It will address how to organize foundation groups of parents, key issues that need resolving to ensure success, and solutions to the common pitfalls that may occur at various stages.
Presenters:
Heidi Cartan is the Executive Director of the nonprofit, Costanoa Commons. She also has an adult son with cerebral palsy.
http://costanoacommons.org/
Larry Grotte is the President and Director of Rident Park. He also currently serves as a Board member of Gatepath, a nonprofit agency serving children and adults with developmental disabilities. Larry has a son Peter with developmental disabilities.
http://www.ridentpark.org/
Anya Hobley is the Director of Resident Admissions & Services for Camphill California a life-sharing community for adults with developmental disabilities located near Santa Cruz, California.
http://www.camphillfoundation.org/
Jerry Horton and his wife founded Down Home Ranch which is a working farm and ranch, where about 50 adults and children—including 37 with Down syndrome and other disabilities—live year round, caring for one another and for our 410 rolling, forested acres in Central Texas. He also has a daughter, Kelly, who Down Syndrome.
http://www.downhomeranch.org/
Desiree Kameka is the Director of Community Education and Advocacy at the Madison House Autism Foundation. Her work focuses on researching housing issues, advocating with organizations, families, and autistic adults on housing issues, and presenting her work at local and national gatherings.
http://www.madisonhouseautism.org/
Saanen Kerson is on the staff at Vine Village, Inc., Napa County. Vine Village is a non-profit organization which her family co-founded in 1973. The goal is to provide people with special needs with the same quality of life that should be the birthright of all citizens. Vine Village provides residential and day activities programs to people with special needs.
http://www.vinevillage.org/
Alex Krem is the Chairman of the Board of Directors for Living Unlimited. He has been actively involved with the special needs community since 1957. Alex holds multiple degrees (BA, MBA, and JD) from the University of California at Berkeley and has also studied industrial psychology at the Ph.D. level at the University of Minnesota.
http://www.living-unlimited.org/
Materials:
Slides from housing panel presentation
Room: Mainstage
INNOVATING NEW SUPPORTED LIVING SOLUTIONS PANEL
About this session:
Where will my child live when older? When I die? This urgent question must be answered by all parents whose children are intellectually or developmentally delayed. Solutions range from arranging to leave the family home in trust or simply purchasing another home nearby and renting rooms to more structured and well supported solutions. Fortunately, there are many successful examples of the latter option -- and many more under development now. Unfortunately, demand far exceeds supply and most parents will have to develop their own solutions.
This panel will explore solutions created or managed people who have actually succeeded. It will address how to organize foundation groups of parents, key issues that need resolving to ensure success, and solutions to the common pitfalls that may occur at various stages.
Presenters:
Heidi Cartan is the Executive Director of the nonprofit, Costanoa Commons. She also has an adult son with cerebral palsy.
http://costanoacommons.org/
Larry Grotte is the President and Director of Rident Park. He also currently serves as a Board member of Gatepath, a nonprofit agency serving children and adults with developmental disabilities. Larry has a son Peter with developmental disabilities.
http://www.ridentpark.org/
Anya Hobley is the Director of Resident Admissions & Services for Camphill California a life-sharing community for adults with developmental disabilities located near Santa Cruz, California.
http://www.camphillfoundation.org/
Jerry Horton and his wife founded Down Home Ranch which is a working farm and ranch, where about 50 adults and children—including 37 with Down syndrome and other disabilities—live year round, caring for one another and for our 410 rolling, forested acres in Central Texas. He also has a daughter, Kelly, who Down Syndrome.
http://www.downhomeranch.org/
Desiree Kameka is the Director of Community Education and Advocacy at the Madison House Autism Foundation. Her work focuses on researching housing issues, advocating with organizations, families, and autistic adults on housing issues, and presenting her work at local and national gatherings.
http://www.madisonhouseautism.org/
Saanen Kerson is on the staff at Vine Village, Inc., Napa County. Vine Village is a non-profit organization which her family co-founded in 1973. The goal is to provide people with special needs with the same quality of life that should be the birthright of all citizens. Vine Village provides residential and day activities programs to people with special needs.
http://www.vinevillage.org/
Alex Krem is the Chairman of the Board of Directors for Living Unlimited. He has been actively involved with the special needs community since 1957. Alex holds multiple degrees (BA, MBA, and JD) from the University of California at Berkeley and has also studied industrial psychology at the Ph.D. level at the University of Minnesota.
http://www.living-unlimited.org/
Materials:
Slides from housing panel presentation